The 24-year-old Santa Monica, California, woman has Hirschsprung's disease, a rare congenital disorder that obstructs the large intestine due to an absence of nerve cells that regulate muscle movement.
She never attended public
school full time, has been in and out of hospitals since she was a
newborn, and discovered that the one thing she can eat without getting
sick is a bag of Cheetos.
Now, Pearce needs four organs -- a liver, kidney, pancreas and small intestine -- from a deceased type O donor to live.
"It's a pretty unusual
circumstance," said Dr. Alan Langnas, chief of transplantation at the
University of Nebraska Medical Center, where Pearce is being treated.
"Fortunately, she's young, and youth trumps everything. She's in very
good shape relative to her condition."
At birth, Pearce was one
of only three people in the world with her particular type of disease,
and doctors predicted she wouldn't live beyond her first year.
Growing up, "I would go
to school when I could, but I didn't know anybody and always felt left
out," Pearce said. "Most of the time I felt OK, but I was really in a
fragile state. I just wanted to be a normal kid."
Pearce managed her
disease as well as possible but experienced a major setback at 12 when
she was given a drug too powerful for someone of her size. It destroyed
her small intestine and her kidney, forcing her onto a liquid diet. It
wasn't until she was 17 that she received a small intestine transplant,
and at 18 she accepted one of her mother's kidneys.